Cleft Lip and Palate is a birth defect that occurs in 1 in 700 live births. The highest occurrence is in the American Indian, Japanese, and Hawaiian populations. The lowest incident is in the African American population. Cleft Lip and Palate is also more prevalent in males than females; however, an isolated cleft palate without lip involvement is found more often in females.

There are two accepted causes or etiology of cleft palate: (1) Genetic – There is a strong genetic of family history of Cleft Lip and Palate. (2) Multi-factional – possible exposure to toxins or other unknown reasons may create Cleft Lip and Palate.

At birth the primary goal is adequate feeding and weight gain. Most babies are given special nipples to aid in bottle feeding. The first surgery to repair the lip is performed when the child has achieved the "rule of 10” - over 10 weeks of age, over 10 pounds in weight and over 10 grams of hemoglobin at approximately 2-3 months of age.

Usually a team will be involved in the care and treatment of children with Cleft Lip and Palate and other craniofacial syndromes, (Down, Pierre Robin, Cruzons, etc.)

The following is a list of Possible Team Members:

Cleft Family Support Group

Nurse Specialist – Pediatrician

Genetic Specialist

Plastic Surgeon

Speech Pathologist

Otolaryngologists (E.N.T)

Pedodontist

Orthodontist

Radiologist (x-rays)

In Kentucky children with Special Health needs can contact the Cleft Lip/Palate/Craniofacial Clinic at 502-595-4459. Face Forward Kentuckiana is a family support group that meets bi-monthly at Kosair Children’s Hospital.